It’s ok to lose your shit sometimes because if you keep your shit, you’ll end up full of shit, then you’ll explode and there’ll be shit everywhere. A shit storm. And nobody wants that.

A post radiation visit to my radio of fame oncologist today.

He asked how I was feeling.

‘Feeling good,’ I replied ‘Apart from the anorexia and bald patch… And auras’.

‘Auras?’ He questioned (not fazed by the other 2).

‘Yes, not deja vu or seizures, more like a deja vu appetizer.’ I tried to explain.

He looked puzzled.

Then this spewed from my lips…

‘I get this feeling I’m wandering around a misty field and every now and then a memory suddenly pops out at me, it’s either a cute fluffy pony (good memory) or a long horned filthy bull with fire in his eyes (bad memory).’

Nope, still wasn’t explaining myself very well.

So I changed the subject and requested narcotics. I think after that diabolical description he felt I required them too.

I sense a turbulent ride ahead with all this chemo fuckery.

Blood drawn every month, MRI every month, 5 little nuclear bombs arriving via Fedex every 23 days.

So I was venting to a friend this evening.

‘You need a distraction.’ He advised. ‘You’re creative, find something creative and personal you might like to do for yourself to take your mind off what’s looming.’

‘Fuck off!’ immediate response.

‘Pooping on a glass top coffee table is creative and personal. Shall I do that?’

Everyone means well, but if you haven’t been afflicted with cancer or been close to someone who has, its almost impossible to understand what they’re feeling.

Unless of course you’re one of those super rare types filled with intuition and natural empathy.

All we really want to hear is ‘I’m here for you and I love you.’ No advice needed because this is something we figure out on our own.

I’ve said it a million times – Love love love is the answer.. And that’s it.

I’m heading into the Bermuda Triangle now for another week of love… And the added bonus of perfect pink sand, crystal clear warm ocean, 100% humidity and giant flying cockroaches.

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I don’t know what I’m doing but I’m doing it my way.

I made an important life changing decision today but I’ll get to that in a little while.

We had another appointment to meet the radiology team.  This time, the lovely people I’ll be seeing 5 days a week for 6 weeks.

First I had to pee in a minuscule cup. As always my aim was off, I got it on my hands, shoes, the loo, the floor and all over the cup.  The shocking thing though was the colour of it.. Fluorescent Orangina, without the fizz, swishing around. 

Clearly, I hadn’t consumed enough water since the contrast MRI yesterday where they pumped me full of fluid to see if Bambi was still lurking.

The reason they performed the pee test was to see if I was pregnant.. Even though I’d informed them I haven’t had a period in forever they still felt it prudent to check. 

We waited with baited breath and I mentioned to M that this could be the first menopausal immaculate conception baby ever, or better still..   Twins. 

It took an unusually long time for the results, which convinced me it WAS twins.

Naturally I started thinking names. If it’s girls.. Bunny and Hunny.. And boys.. Danger and Ranger.

Eventually results came back and surprise surprise no little menopause babies for us. We’ll just have to get more pets to fill the empty nest. Maybe I can play the cancer card to get the 3 donkeys I always wanted. Boli, Dom and Krug. 

So even though I still don’t know if I’m having Photon or Proton therapy the wheels have been set into spinning motion and the biggest deal is the radiotherapy mask which is essential when attempting to eradicate evil brain cells at the same time as trying to keep the good guys.

The procedure was explained..  it would feel like a spa treatment.  

I wasn’t falling for this and decided to pop a couple of Valium just to be on the safe side.  So by the time the process started I was feeling spa-like relaxed and they could’ve told me I was in the Mandarin Oriental Miami and I might’ve believed them. The moulding and sculpting took place and was followed by a swift CT scan.

Me getting moulded (or ‘molded’ if you’re American)

So the huge life changing decision we had to make came next.

What type of mask would I like?   

I was offered a bland selection but nothing appealed.  I asked the nice radio man if I could have a superhero mask and he looked at me in a blank kind of shocked way and said ‘Well we do this for children sometimes, but I’ve never been asked to do it for an adult before.’   ‘Yes, but is it possible?’  Was my response  ‘Okay, well I can show you a few kids ones I’ve done.’  He answered.  

He then revealed a selection of impressive photos – a pink unicorn, the Incredible Hulk and Wonder Woman.

It was a tough choice as I’d been secretly dreaming of Spider-Man. But then I thought, maybe I’d like something more feminine and enquired what his opinion was re. making me the face of a blow-up sex doll.  

M stamped his foot at this and said NO WAY’

Then we moved back to superheroes and I suggested a sultry looking Catwoman. We liaised over some provocative images of Michelle Pfeiffer and Halle Berry then found a sexy Catwoman compromise and all agreed that would do the trick.. Minus the latex suit of course.

The blank canvas

So there you have it.  Biggest decision made today and I’m going to face this terra-fucking-frying treatment as goddamn Catwoman!  

MEOW! 

Technically I’m a brain cancer virgin but I feel like I’ve been on the game forever.

I met with the radiology team and I’m now confident I could pass my O-Level physics.  I failed first time.

Proton or Photon..  I had no idea what either was. I know what a futon is but apparently it’s not related.

Proton is better than Photon I know that much. And I know this because doc drew lovely descriptive pics for me.  Proton is aimed at just the cancer and has no exit point. Photon, not so tempting as needs an exit..  It also fries more healthy cells.  I can’t afford to lose more precious brain cells!  The downside to Proton is possible permanent hair loss..  But what would I prefer..  Hair or brain cells?  It’s a no brainer.   (No pun intended.)   I may be trending the comb-over. 

So the obstacle is the minefield of negotiating with US insurance companies..  They don’t like to fork out for Proton but my fabulous docs assured me they’d fight it.  If it doesn’t happen then Photon it is..  That, or I could just stick my head in the microwave for a few minutes every day.

They also told me I’d need to be fitted with a special kind of mask.  I requested the Spiderman kind… they said they’d consider it.

Every doc I’ve met post surgery has congratulated me on how well I look.  And it definitely wasn’t a chat-up line. 

I don’t look sick, but inside my head is in trauma. So a life lesson I’ve learnt recently..  We seriously have no idea what kind of awful fucked up shit people are dealing with in their private life’s..  So we just need to be kind..  Simple! 

Oh and a final observation for today..  People who refer to cancer as a ‘journey’ need to shut the fuck up.  Unless you plan on taking me on a five star first class vacation to the Maldives please don’t say it.


It’s a dog’s life..

I kind of know how dogs feel.. Especially dogs that live in pleasant houses with pleasant owners.. 

As like a dog I sleep, I go for the odd walk around the block, then I come home and sleep again. I guess the only difference is I don’t shit in public, I don’t hump inanimate objects and I don’t sniff ass. 

When I’m awake I’m consumed with déjà vu.. This often indicates a seizure is pending.. But not always.

Being on the edge of a seizure is goddamn fucking frustrating because you just wanna get it out.. It’s like being on the edge of a sneeze or an orgasm.. But you can’t quite make it happen.

Conveniently it appears I’ve become allergic to housework.  I was dusting yesterday when things got trippy and Brad Pitt appeared on the sofa.. Which made my face tingle.. At least it was only my face. 

The seizure ran its course, then ended with the acrid smell and taste before I was transported back to reality.  

Obvs I can’t carry on seeing Brad lounging on my settee so a swift visit to my neuro and an increase of cocktails should put a stop to it. I won’t think of myself as overly medicated.. Just pharmaceutically fabulous! 

I also met my oncologist.. A charming man but not sure he appreciated my humour.  Although after we’d played a game of funny bone smacking and feet tickling I’m pretty sure we bonded.

Next up is a radiography consult.. But in the meantime I’m wallowing in the delight of one of my perfectly darling oldest besties here to look after me..   She’s already demonstrated the best way to have ‘lazy sick person sex’.   

Instructions to follow. 

The Sex Guru and Me mid orgasm circa 1999

I might have been born in the shadows of Windsor Castle but I knew I’d burst into the sunshine eventually.

Not sure if it’s my eloquent British accent but honestly the US medical system have treated me like a princess throughout this freaky fiasco.

I have an exemplary A Team Royal Entourage, which must at the very least match that of HRH Megan, the new Duchess of Sussex.

I‘m being cared for by unquestionably brilliant people..   Neurosurgeons, neurologists, oncologists, radiologists, doctors, nurses.  Not to forget my incredible group of beautiful friends who are flying in from all over to cook for me, enterain me and walk the dog.   

The only team members missing from my ‘inner circle’ are the stylists, make up artists and hairdressers.

I even have a PA, Chauffer and Chief Protection Officer (AKA M), which incidentally came in handy today when a suspicious looking package arrived from Latvia.   

I suggested M put on his bicycle helmet – take said package to garage for inspection and controlled explosion.

Instead he bravely opened it on kitchen counter with a pair of kitchen scissors. 

Rather than an assemblage of brightly coloured cables and alarm clocks the box revealed a lovely selection of heart shaped beach stones sent to me by my gorgeous sister-in-law as a symbol of our love and the personal significance they hold.

I’ve also discovered that having a brain tumour is a full-time job and having an efficient PA to pick up the slack is imperative– there are appointments to be made, insurance companies to negotiate with, thank you notes to write.. It’s round-the-clock non-stop. 

I barely have time to squeeze in a mani and wax – although I might not need that for a while once the chemo and radio kicks in.

It’s time for M to iron my pjs and run me a bubble bath now.

Good night all, I hope you have sexy dreams or flying dreams (they’re my favourite kind).

P.S. There are no mother-fuckers or cunts in this post because some of my friends mums are reading my blog and there’s concern my cursing is offensive. 

Sorry about that!