It’s ok to lose your shit sometimes because if you keep your shit, you’ll end up full of shit, then you’ll explode and there’ll be shit everywhere. A shit storm. And nobody wants that.

A post radiation visit to my radio of fame oncologist today.

He asked how I was feeling.

‘Feeling good,’ I replied ‘Apart from the anorexia and bald patch… And auras’.

‘Auras?’ He questioned (not fazed by the other 2).

‘Yes, not deja vu or seizures, more like a deja vu appetizer.’ I tried to explain.

He looked puzzled.

Then this spewed from my lips…

‘I get this feeling I’m wandering around a misty field and every now and then a memory suddenly pops out at me, it’s either a cute fluffy pony (good memory) or a long horned filthy bull with fire in his eyes (bad memory).’

Nope, still wasn’t explaining myself very well.

So I changed the subject and requested narcotics. I think after that diabolical description he felt I required them too.

I sense a turbulent ride ahead with all this chemo fuckery.

Blood drawn every month, MRI every month, 5 little nuclear bombs arriving via Fedex every 23 days.

So I was venting to a friend this evening.

‘You need a distraction.’ He advised. ‘You’re creative, find something creative and personal you might like to do for yourself to take your mind off what’s looming.’

‘Fuck off!’ immediate response.

‘Pooping on a glass top coffee table is creative and personal. Shall I do that?’

Everyone means well, but if you haven’t been afflicted with cancer or been close to someone who has, its almost impossible to understand what they’re feeling.

Unless of course you’re one of those super rare types filled with intuition and natural empathy.

All we really want to hear is ‘I’m here for you and I love you.’ No advice needed because this is something we figure out on our own.

I’ve said it a million times – Love love love is the answer.. And that’s it.

I’m heading into the Bermuda Triangle now for another week of love… And the added bonus of perfect pink sand, crystal clear warm ocean, 100% humidity and giant flying cockroaches.

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My husband’s amazing, he’d take a bullet for me. But he’d still criticise my driving on the way to the hospital.

Safely back in the US of Trumpton after binge watching a whole box set en-route only to discover that during the last 5 minutes of the last episode I’d already watched the whole goddamn series pre Bambi.

Picked up Maddog from gorgeous sis and bro in law. They still seemed fairly sane and weirdly attached to him. I think it’s called Stockholm Syndrome.

Then the 7 hour drive which takes as long as the Atlantic crossing.

Feeling hellishly homesick. Didn’t want to leave Blighty so planning on escaping this place again ASAFP.

The thought of starting chemo is nauseating. Not in a scary kind of way, more in a ‘For fuck’s sake, more fucking shit to deal with’ kind of way.

I want to get back to normal, plan holidays, drink copious amounts of fizz with my friends, ride a horse when I feel like it, work, go back to the gym and get back into shape.

I look like an old Barbie doll, who prior to getting crushed under Action Man’s tank in the bottom of a toy box 40 years ago, had her tits and hair chopped off by some fiendish demon child.

And whilst dealing with prolonged jet-lag I’ve been lounging around reading Brain Tumour Survivor stories.

This is serious stuff for the next 60 seconds.

Ridiculously there’s around 120 types of brain tumour. This might sound like a lot, because it is.

You almost have to multiply this by the amount of people in the world who have brain tumours to get an understanding of the enormity of the research required.

Because every single person reacts totally differently to every single tumour.

In our gang of 4 Love Honey Survivors 3 of us have the same tumour. But different sizes, different locations, different mutations.

Which means over the long term we’ll all fair differently and react differently to surgery, chemo and radiation.

Apparently around 5 in every 100,000 people in the general population will draw a short straw and end up with a Grade 3 Anaplastic Astrocytoma, so you might as well multiply 5 by a billion trillion… it’s impossible to believe statistics because every single case is different!

Some people carry on for years after treatment no problem, others have a recurrence within weeks or months, some have surgery time and time again and a few don’t make it at all.

Every human being has a cut-off point as to how much they can take… so this got me thinking about my cut-off point.

It’s been easy so far, almost a bizarre novelty walk in the park.

But it’s getting monotonous and the thought of having surgery, radiation and chemo all over again is exasperating. Especially when it’s a waiting game and all down to luck of the draw.

Tick fucking tock.

Right, that rant’s off my newly flat chested chest and I’m signing off… to book a flight to Bermuda.

I need warm ocean and pink sand right now, not toxic chemicals and poison.

Fuck cancer. Chemo can wait another week.

Being able to respond with sarcasm within seconds of a dumb comment or question is the sign of a healthy brain. I’m not being rude. I’m just getting some much needed exercise.

When diagnosed with incurable goddamn brain cancer on Valentine’s Day** I knew, no matter what, I’d make it to my blue-eyed boy’s leavers ball (that’s graduation to Americans).

**Thx Cupid you dumb dick… You’re supposed to stick the arrow through my heart not my brain.

Anyway…

Not only did I make it to the ball but I drank, ate, socialised, went in the photo booth 32 times, attempted the bumper cars, but M dragged me away hissing ‘Have you forgotten you’ve got a massive fucking hole in your head?’

I enquired to our housemaster, ‘Sir, please be honest, is my kid in your top 10 naughtiest kids ever?’

‘Oh no’ was his reply.

I sighed waiting for something further.

Housemaster transitioned to stern teacher face and added ‘He’s in my top 3!’

YES!!! My blue-eyed boy’s going far in this world.

So my ultimate goal was not to expire prior to midnight. I lasted ‘til 2am… Screw you Cinderella.

I needed to get the most out of the beautiful gown gifted by my gorgeous girls.

We spent the weekend with bestest friends. One of whom travelled from Aus that am, played a round of golf that pm, then drove 200 miles to get pissed with us. That’s friendship!

The evening consisted of delicious lamb, erotic sexual poses against an old rover and Cards Against Humanity.

We laughed, cursed and spewed hilarious profanities. I didn’t inherit my potty mouth… I learned it from my foul-mouthed friends.

My baby sis’ and I visited the cemetery and left flowers for our beloved grandparents. The only adults who showed me unconditional love as a child.

Dinner on a lake and another debouched night followed.

Then a smart party hosted by Lord and Lady Q which aptly ended in a face licking competition. I’ve yet to catch Lord Q, however her Ladyship’s always up for it.

Then to London for 4 more nights of love.

Love arrived from Bermuda aka my gorgeous Guru and Godson laden with the bags of green cow fodder she still tries to cram inside me.

Next, love and lunch from Sussex. The wonderful women who I always wished could be my real mummy and sister.

Dinner on the Thames with dearest friends where I attempted a citizen’s arrest after an enibirated youth pissed in the river.

A 6 hr liquid lunch in Notting hill. Old friends, new friends, crackheads wandering by… One of whom became aggressive/racist/way too opinionated …

So I took matters into my own hands and stood up, lifted my hair and declared…

‘Seriously? You think you’re having a tough time? Look at this… I’ve got goddamn fucking brain cancer and weeks to live (slight exaggeration). Shut the fuck up, sit down and have a drink… Or fuck off.’

You can’t waste time trying to understand idiots. Unless you’re the fuckface whisperer, which I’m not.

An old acquaintance wandered by and stopped to interrogate me on the use of profanities in my blog… I replied ‘Did you know, the clitorous has 8000 nerve endings, but still isn’t as sensitive as some of the cunts I’ve met over the years.’

Whoops 1 less reader. I spend a lot of time realising I should have stopped talking 10 minutes ago.

Later that night something triggered the ‘funny turns’. It’s been two drama-free months then suddenly… bam! Extended periods of deja-vu again.

Rest was ordered or M would have strapped me to the bed (and not in an S&M kind of way). It seems I’ve become a pro at choking on air, falling up stairs and tripping over nothing.

Once up and about I purchased 27 lottery tickets… It’s the only way I’ll get to live in my favourite Holland Park postcode.

A final post-gay-pride supper with two gorgeous men I’d married had they not been gay.

Followed by a farewell lunch with beloved friends and hugs with my blue-eyed boy before heading to Heathrow for the long haul back.

So there you have it. I’m living proof that you really can fuck brain cancer and live a carefree-ish life… Well for 2.5 weeks anyway.

Next week the motherfucking toxic chemo bandwagon will be rolling into town to start the next chapter of thundercunt cancer treatment.

Bring it on bitch.

I’m a lady but ‘fuck that shit’ is still a perfectly good substitute for ‘no’

Imagine you’re about to embark on a trip to an unexplored planet far far away. Let’s call it Jedha.

I’m Princess Leia and M’s Hans Solo… Or maybe Chewbacca depending on time of day.

That’s what it felt like when we packed up and drove Darth Vader aka Reggie Maddog to Boston en-route to London.

Before we departed, friends asked ‘You must be excited for you trip?’

TBH borderline goddamn fucking terrified was more accurate. Even though I’ll admit I’ve contributed my fair share of carbon emissions to our planet I was now entering unknown territory.

My heightened senses fluster me. Smell, taste, sound, sight has revamped. Tolerance, energy, stamina has reshaped.

I kept thinking ‘Fuck, what if I shlitz my Vicki’s during check-in or what if my titanium skull sets the bells ringing in security or what if my brain blows at 40,000 ft.’

I was vexed at the thought of not being able to neck my usual aperitif of 3 shots of fizz in the lounge then 3 more onboard prior to passing out for 6 hours.

Fuckerty fuck this was going to be a tiresome journey.

The drive to Boston took 7 arduously dull hours, longer than the goddamn 3500 mile flight to Blighty.

Vador spent the road trip farting and barking at random truckers.

We finally arrived at my gorgeous sis/bro in-laws picture perfect home at 2am. Vador spent the night pacing with his lightsaber, a stick he’d found in the garden. At one point I woke with him sitting on my chest and I swear he said ‘I am your father.’

By the following afternoon it was obvious, I’ve become the dullest houseguest in the history of dull houseguests. I spent 23 of the 24 hrs at this house sleeping.

I finally pulled myself together and we left our gutsy hosts with their captor Vader and trotted off to the airport.

We cantered through security with no frisking required and galloped to the lounge.

All very relaxed. And fuck me it was bloody marvellous to hear the chitter chatter of English accents again. Techie boys, posh boys, twatty self-important boys… Felt like home already.

My guru called to wish us a good flight and as I had her on speaker everyone overheard when she loudly enquired ‘Have you taken your dog worming pills yet?’ Followed by ‘And has your shit been tested for parasites?’

All banter ceased and heads turned to stare at the freak show with the discernible bald patch. Nice one sista.

We then boarded, I attempted a glass of fizz. Two sips and night-night out like a light.

We must have bombed because I woke to the beautiful green green grass of Blighty down below.

2 hours later we were home and ‘oi oi saveloy’ there was the Cheshire Cat sitting in the garden purring and grinning from ear to ear.

Back to my little world far far away from the adventures of the last 4 months. Time to breath, eat and attempt to get messy on it at least once in the next 2 weeks.

*Please note that due to the comments of a self righteous bossy battle-axe I’ve used self control and refrained from using the cunt word throughout this entire post.

You know that thing inside you that stops you from saying stuff you probably shouldn’t? Yeah well mine’s fucked.

Yesterday someone said to me ‘One day we’re all going to die’. 

I nodded and agreed but in my head I was saying ‘Of course we are… Shut the fuck up you tedious twat’.

Obvs we’re all going to die ‘ONE DAY’,  but for every day we’re not dying,  we’re LIVING!  Duh.

So I’ve reached week 3 of Proton Beam Therapy.  I haven’t mentioned it much as felt it needed a full review before I passed comment.

(Like one of those people with the felicitous job of reviewing luxury spas and hotels.)

Anyway, I think now is a good time to post said review.  

And it’s 5 stars from me. 

The team is gorgeous, funny, warm, gracious, kind… Every positive adjective available to compliment people whom ‘point a laser beam from a 60ft machine, weighing 220 tonnes, creating light beams traveling at 2/3rds the speed of light through a 143ft cable’ at MY BRAIN.

Although we had a hiccup the other day when Bertha (the machine) decided to crash mid-session.  

I was screwed to the table in my head-hugging Catwoman mask listening to Blondie singing Atomic when Bertha suddenly shut down.  

I waited a minute. Then thought ‘Shit, they’ve all gone to lunch and forgotten me!’ 

Panic set in and suddenly I was The Man in the Iron Mask, only I was also fastened by the head to a goddamn fucking bench.  

The tears streamed and the screams rose but I couldn’t open my mouth…  So I raised a panic-stricken arm and waved frantically like a 5 year old chasing down the ice cream van. 

Thank fuck they saw me on the monitor and rushed to my rescue. 

No one had gone to lunch… Nincompoop!

Bertha needed her butt kicking though, so a hammer holding Oompa Loompa went subterranean and give her a good banging.  She perked up after that and we were cooking with protons again.

I also get a weekly tête-à-tête with my brilliant radio oncologist.  An adorable man who definitely got an A* in every single physics test he ever took. 

I make a list of critical questions beforehand so I don’t forget anything. This week’s list:

1. Can I get a prescription for medical marijuana?

2. How much hair will I lose.. like 100 millions strands or 100 thousand or just a few?

3. Can I get a prescription for medical marijuana?

I know I’m immensely lucky to receive the latest technology in radiation therapy. The insurance company denied it 3 times and on each occasion my docs fought back for me. 

Not sure what arguments they used… But if they hadn’t passed their doctor exams they’d have made fabulous defense lawyers.

Finally today I’m sharing a note I received from a dear friend.  Someone who wears so many hats for me, dad, brother, stand-in-husband, dance partner, barfly buddy…  I adore this man and the love I feel all around is what’s getting me through this fucked up 5 minutes in time. 

Dear Sarah

Most of the time I don’t know what to say, so I continue the bizarre nature of my world. 

While my heart is breaking as two of the most wonderful people I have ever met are going through a similar journey. 

You fill my thoughts and I spend each night sending the highest energy to you. 

The power of the universe can and will win. When you are through this we will start an Ashram somewhere? India? Arizona? Mexico? We have the power together. 

The energy around you is amazing and growing. We are all using the blog to help channel it. 

Post more, loads of F words…  it makes it so very funny.

If love had a value, you my dear girl are richer than Hatshepsut.

All my love ‘Dad’ xxxx

dad, brother, stand-in-husband, dance partner, barfly buddy…  

‘You can’t arrest me, I’m a rock star’. (Sid Vicious)

What do you get when you put two super-sexy high-powered middle-aged Englishwomen, an 18-year-old thespian skinhead, a designer Australian Labradoodle with a questionable haircut and a bag of ‘special ’ gummy bears on a sofa together?

High as heck baby. 

One got jiggly, one got giggly, one got wiggly and one got licky.  Then they all got excessively munchy.

Luckily we’d pre-emptied this scenario and there was an extensive Japanese sushi banquet in the kitchen waiting to be inhaled.

I of course was an outsider looking in..  A spectator watching the spectacle unfold.  My current situation and cocktail of narcotics probably wouldn’t have been an agreeable mixer so I had to sit on the side lines of this little soiree.  

You might well think that Saturday nights in the house of a brain tumour person would be a tad tedious and tame..  But not around here honey.  It’s all about love and other drugs.

Having a goddamn mother-fucking brain tumour isn’t going to eliminate the good-time-party-girl in me.   

After all..  A little party never killed nobody and who knows what fucked up shit tomorrow might bring.

‘A naked woman in heels is a beautiful thing. A naked man in shoes looks like a fool.’ Christian Louboutin

Lately my life’s become a set of fucked up life changing events separated by intermittent snacks and naps. 

Hence a little snack I had yesterday ended up going a bit Pete Tong.

After devouring a bountiful amount of fine Swiss chocolate I retired upstairs for a nap.  

It’s true that I’ve always been a person who wants to do a lot of stuff most of the time..  

But lately I find myself trapped in the body of a person who wants to do mostly fuck all most of the time.   

So I was surprised when en-route to my bed I randomly had the fancy to re-organise my shoe closet.

Perched on the floor whilst dispensing unwanted footwear to charity bag..  That old familiar déjà vu feeling wafted over me..  

Memories of dancing shoes, workout shoes, party shoes, fuck-me shoes.. there’s stacks of memories in shoes.  

And then it happened.. I experienced a pre-surgery-parallel-universe-out-of-this-goddamned-world seizure.  

Proof that I’m a hardcore hypochondriac..   And never do anything half ass. I also didn’t have any canine rectal valium at hand.

An urgent call was made to my gorgeous angel friend (aka my surgeon’s PA). 

She expedited hospital action where a nice man with a shiny beard rolled me into the CT for a swift scan. 

Next up.. Blood works and ouch.. Turns out it was Nurse Nancy’s first day and I was her first ever patient but luckily she had some deliciously distracting tattoos.

Home to await results. 

CT confirmed brain’s looking dope* post Bambi and my blood’s made of sterling stuff.   

*I’m reaching out to younger audience hence use of this new word preferred by teenagers to express excellence.

So there’s a little hiccup in the remedying of my ailment ..  My cocktails require spicing up.. And I need to abstain from all caffeine and find a new vice!  

Luckily one of my favourite vices is flying in on a jet plane in a few days time.